Influencing Policy – Wellcome Sanger Institute Blog

The duty of care: a genetic balancing act?

March 19, 2020March 19, 2020 Sanger Institute genetic counselling, genetic testing, Huntington Disease min read

Genetic testing is becoming a standard part of UK healthcare, with plans to expand its use. But who does this information belong to, and who decides who it is shared with?

Influencing Policy

Developing a view on Brexit

January 17, 2019January 17, 2019 Sanger Institute brexit, EU, European Union, immigration, policy min read

Sarion Bowers, Policy Lead at the Sanger Institute, reflects on how Brexit will affect science.

Influencing Policy

Human genome editing – the issues explored

December 20, 2018March 14, 2019 Communications Team crispr, editing embryos, ethics, germline editing, human genome editing, Influencing Policy, Sanger Science min read

Hayley Clissold from the Sanger Institute’s policy team team explores the issues surrounding gene editing and human embryos

Influencing Policy

Scientific Evidence in Policy Making

December 11, 2018December 12, 2018 Sanger Institute Influencing Policy min read

Evidence is a vital part of policy-making – but it’s by no means the only part. We look at how scientists can get involved and make a difference.

Influencing Policy

Claims of genome edited babies shock the world

December 6, 2018March 14, 2019 Sanger Institute crispr, embryo, genome editing, Genome Editing Summit, He Jiankui, Influencing Policy min read

Our Policy Lead, Sarion Bowers, explores the extraordinary claims that the world’s first genome edited babies have been born.

Influencing Policy

Human Embryo Editing: science fiction or science fact?

November 29, 2018March 14, 2019 Communications Team anna middleton, crispr, gene editing, he jainkui, human embryo, Influencing Policy, Sanger Life min read

Anna Middleton, Head of the Society and Ethics research group at Wellcome Genome Campus Connecting Science, reports on Prof He Jiankiu’s unverified announcement of gene editing the first human embryos that have been born

Influencing Policy

Science as a human right

November 9, 2018November 9, 2018 Communications Team brexit, government, Influencing Policy, policy, uk min read

The idea that we should benefit from scientific advancement is something we may never have thought of as human right, yet the Universal Declaration of Human Rights firmly makes the case that it is everyone’s right, regardless of education, wealth or background, explains Sarion Bowers

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A new deal on data – articulating the contract between science and people

June 20, 2018October 4, 2018 Communications Team data protection, Featured, gdpr, Genetics, Genomics, Healthcare, medical records, NHS, personal data, personalised medicine, policy min read

Now is the time for scientists to strike a deal everyone that benefits society as well as research, argue Anna Middleton, Vivienne Parry and Julian Borra

Influencing Policy

Editing embryos – Could you? Would you? Should you? Views from Genetic Counsellors

August 3, 2017November 9, 2018 Communications Team cripsr, designer babies, editing embryos, embryo, ethics, genetic counselling, germline editing, Influencing Policy, policy, pregnancy min read

03.08.17 This week the American Society of Human Genetics issued a policy on the application of germline editing – the ability to alter the genetic makeup of early stage embryos. Anna Middleton, one of the contributors to the statement, explains the policy’s position

Influencing Policy

Chief Medical Officer’s annual report 2016: Generation Genome highlights the potential for pathogen genomics in patient diagnosis and infection control

July 3, 2017November 9, 2018 Communications Team chief medical officer, cmo, Genetics, Genomics, Healthcare, infections, Infectious disease, Influencing Policy, NHS, policy, report min read

04.07.17 The UK Chief Medical Officer’s Report has highlighted the vital role genetics and genomics will play in UK NHS healthcare and medicine. Professor Sharon Peacock helped write the report’s chapter on Infectious disease.

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